Who Am I?

My name is Laura and I’m a 30 year old lady who has a rare endocrine disorder called Adrenal Insufficiency. I was first diagnosed with Cushing’s Disease at age 24, and after 3 failed brain surgeries, failed radiation treatment, I had to have my adrenal glands removed. I occasionally update this blog about my medical journey. Happy reading!

What is Cushing’s Disease, you may ask? Hop over to my old blog at http://copelandle.wordpress.com/Β to find out more info! Thanks for stopping by.

13 thoughts on “Who Am I?

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  1. I was diagnosed with Cushings disease in November 2012. I just had transsphenoidal surgery on June 17 2013. Dr. Roper was my surgeon. I’m having an MRI on the 12th of this month to see if there is any part of the tumor left. I sure hope it is gone. I feel absolutely miserable since the surgery! I hope to hear from you. I wonder how similar our symptoms are. I also read that you have friends in SB. So do I! Hope you are doing well πŸ™‚

    1. Sorry for not seeing this comment until now – I’ve taken a bit of a hiatus from the blog…but wow! How’s everything going with you? Dr. Roper is great – I had an appt with him just last week at Shands. Where do you live? Email me – CopelandLE@gmail.com if you have any questions/concerns about Cushing’s. I feel like I’m old pro at this crazy disease – I’ve had 4 brain surgeries and am about to head up to Emory in the near future for a BLA. What the what! Hope you’re well and thanks for finding me.

    2. Laura,
      We are praying and cheering for you. Continue very witty and fun as you seem to be. If you decide to drop by, you can count on us. kisses
      Janice

  2. O feel your pain. I had my thyroid removed and went from a size 4-6 to a 14 veering towards 16. I stayed that way for over a decade and nothing I did, not personal trainers the gym, eating well, and lots of will power, changed it. None of the doctors I consulted had any sympathy. They would suggest I eat less, or work out more (and believe me, there IS a limit even when you are trying hard). When your adrenal system is messed up, your life changes forever. It took 14 years to finally find a way to lose weight, and even now I’m struggling. I know what you mean when you say that to the outside world you look like you’re just a fat girl who doesn’t care enough to do anything about her size. It’s totally unfair when you are not in total control of your body. But I wish you all the best and know that eventually you will find a way to live with the person you are meant to be

    1. Thanks for sharing your story. It’s beyond frustrating to do special things and eat a particular way, that would help a person who doesn’t have a messed up endocrine system. Come to find out the hard way, hormones control every single aspect of one’s life…I’m slowly accepting myself for who I am, as I can’t exactly hide behind my size. And I’m not saying that overweight people are gross by any means, rather that it was a huge shock to me personally when my weight skyrocketed. Anyways, I wish you the best and want you to keep on smiling πŸ™‚

  3. I am a beauty, fashion and relationship editor and therefore in the public eye in a field that is dominated by image. That’s really difficult. Trust me, you just have to know who you are, and be confident. Although it sounds trite, what it INSIDE is always what triumphs

    1. I can only imagine. I become more confident with my new body by the day, and I know who I am on the inside. Baby steps, but I’ll get there πŸ™‚ Hugs to you, you sound rather amazing!

  4. Hi Laura, you rock! You know this disease is not you, and I know you will get better. Before you decide on removal of the adrenals- pretty drastic stuff as so many other hormones depend on them, I would encourage you to try a meridian therapy such as acupuncture or Jin Shin Jyutsu (non invasive) to unblock the stuck energy in your endocrine system. There’s always a reason why things happen. I have thyroid issues, and the energy work has helped me tremendously. Look up http://www.jsjinc.net for a Jin Shin Jyutsu practitioner locator. The site also shows the Main Central Vertical flow, a self help exercise which just happens to harmonize all the endocrine glands. Practice and persistence pay! Much love and healing to you x

  5. I am truly touched by your story. I too had cushings, though not as severe as you. I had a tumor on my adrenal gland which Dr. Su from Shands removed in September. So far my labs look good. My other adrenal gland has kicked in and I am finally feeling more like me and coming out of the fog I had been in for quite a while. I have dropped almost 20 pounds and I can sleep at night without drugs and function on a day to day basis. I know the double adrenal removal sound harsh, but at least Addison is controllable with drugs, whereas there is none for cushings. Don’t give up hope and keep pressing to get your life back.

  6. Hi. My name is Andrea. I’m 23 and a survivor of Cushings Disease as well. Randomly creeping on Pinterest and I came across your blog. Wow, you are awesome! I’d love to share my story with you via email if you’d like to! πŸ™‚

  7. I just wanted to say, I know you are struggling with body image, but I think you are beautiful. Beauty, I believe, is in the eye of the beholder.

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